ACT is the Association for Children with Life-threatening and Terminal Conditions and their Families

www.act.org.uk

ACT is the Association for Children with Life-threatening and Terminal Conditions and their Families. ACT’s vision is to achieve the best possible quality of life and care for children and young people with life-threatening or life-limiting conditions and their families, wherever they live and whatever their condition.

ACT seeks to influence, co-ordinate and promote excellence in the provision of care and support for these children and families.

ACT MAKES A DIFFERENCE BY:

Supporting families with a National Information Service - this service provides information via telephone, email and letter. It responds to enquiries from families, professionals and organisations and draws on the UK’s only national database of children’s palliative care services

Campaigning - ACT campaigns tirelessly for the provision of co-ordinated palliative care services for children throughout the UK. Our aim is to ensure that there is equal access for all children and families to specialist skills and support.

Producing support material - ACT produces many specialist publications and general information packs for families, practitioners and policy makers.

Promoting information sharing and dissemination - ACT believes in the importance of sharing information and best practice. We hold conferences and seminars as well as advising and influencing policy and service development.

Developing care provision - ACT researches and publishes guidelines and specialist literature.

Providing one voice - ACT provides one voice on behalf of all children with life limiting conditions.

SO FAR ACT HAS

Identified and Championed Unmet Needs
ACT has brought together families caring for children with a variety of different conditions and enabled many of them to have their voices heard for the first time.

Advised and Influenced
As the UK’s leading representative body in the field of children’s palliative care it has been in a position to influence and advise on policy and service development issues for the sector. Which in turn helps to achieve the best possible quality of life for children and young people.

Held Conferences and Seminars
The charity has promoted best practice by running a wide variety of workshops. This has enabled practitioners to better meet the needs of children and families.

Researched and Published
ACT has produced a number of documents, including:

  • The ACT Charter, which set out for the first time the standards of care which families should expect to receive.
  • The Information Pack for Families caring for life-limited children, which provides support and information on where to turn for help.
  • The Guide to the Development of Children’s Palliative Care Services. This influential Guide has defined and helped to shape children’s palliative care both in the UK and overseas.
  • The world’s first integrated multi-agency Care Pathway for life-limited children

A Membership Scheme
ACT has an active membership of parents of life-limited children as well as individual professionals, professional bodies, voluntary organisations and children’s hospices - in fact anyone who is interested in the care of children with life-threatening conditions.

As a strong collective voice ACT can continue to affect policies and the planning and provision of services. Membership of ACT means that you will be part of that voice.

Website: www.act.org.uk

ACT
Orchard House
Orchard Lane
Bristol BS1 5DT

Tel: 0117 922 1556
Fax: 0117 930 4707
Email: info@act.org.uk

 

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